Genetic Databases: Socio-Ethical Issues in the Collection and Use of DNA

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Synopsis
Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercial involvement in the creation and use of genetic databases. The authors argue that policy and regulatory frameworks produce a representation of participation that is often at odds with the experiences and understandings of those taking part. The findings present a serious challenge for public policy to provide mechanisms to safeguard the welfare of individuals participating in genetic databases.
Copyright:
2004

Book Details

Book Quality:
Publisher Quality
Book Size:
224 Pages
ISBN-13:
9781134373345
Related ISBNs:
9780415316798, 9780203577929, 9780415316804
Publisher:
Taylor and Francis
Date of Addition:
Copyrighted By:
Richard Tutton and Oonagh Corrigan
Adult content:
No
Language:
English
Has Image Descriptions:
No
Categories:
Nonfiction, Technology, Social Studies, Law, Legal Issues and Ethics, Medicine, Sociology
Submitted By:
Bookshare Staff
Usage Restrictions:
This is a copyrighted book.
Edited by:
Oonagh Corrigan
Edited by:
Richard Tutton

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