Spaces on the Spectrum: How Autism Movements Resist Experts and Create Knowledge

Synopsis

Movements that take issue with conventional understandings of autism spectrum disorder, a developmental disability, have become increasingly visible. Drawing on more than three years of ethnographic fieldwork and interviews with participants, Catherine Tan investigates two autism-focused movements, shedding new light on how members contest expert authority. Examining their separate struggles to gain legitimacy and represent autistic people, she develops a new account of the importance of social movements as spaces for constructing knowledge that aims to challenge dominant frameworks.Spaces on the Spectrum examines the autistic rights and alternative biomedical movements, which reimagine autism in different and conflicting ways: as a difference to be accepted or as a sickness to treat. Both, however, provide a window into how ideas that conflict with dominant beliefs develop, take hold, and persist. The autistic rights movement is composed primarily of autistic adults who contend that autism is a natural human variation, not a disorder, and advocate for social and cultural inclusion and policy changes. The alternative biomedical movement, in contrast, is dominated by parents and practitioners who believe in the disproven idea that vaccines trigger autism and seek to reverse it with scientifically unsupported treatments. Both movements position themselves in opposition to researchers, professionals, and parents outside their communities. Spaces on the Spectrum offers timely insights into the roles of shared identity and communal networks in movements that question scientific and medical authority.

Copyright:

2024

Book Details

Book Quality:

Publisher Quality

ISBN-13:

9780231556330

Publisher:

Columbia University Press

Date of Addition:

01/23/24

Copyrighted By:

Columbia University Press

Adult content:

No

Language:

English

Has Image Descriptions:

No

Categories:

Nonfiction, Psychology, Sociology

Submitted By:

Bookshare Staff

Usage Restrictions:

This is a copyrighted book.