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Patient Compliance: Sweetening the Pill
by Faiz Kermani Madhu DaviesVast global resources are ploughed into the delivery of treatment interventions ranging from diet and lifestyle advice to complex surgery. In all cases, whatever the intervention, unless the recipient is engaged with the process and understands why the intervention has been offered and the part they play in its success, compliance is an issue. Even where the individual does engage and understand, he or she may choose not to comply. Non-compliance is estimated to cost the pharma industry US$70 billion per year. No figures exist for the cost to healthcare insurers and public health but non-compliance is undoubtedly one of the top five issues facing both drug developers and healthcare providers. During clinical trials, non-compliance undermines the accuracy of the data generated from the whole trial as well as particular aspects such as the efficacy of different dosages. This book explores the key factors which drive compliance and the part that healthcare professionals can play in improving this, with the key underlying goal of improving public health in its broadest sense.
Patient Compliance with Medications: Issues and Opportunities
by Richard SchulzImprove your patient&’s health through a fresh view of their behaviorsPatients who use over-the-counter (OTC) and prescription medicine often do not take the drugs as intended, sometimes to the detriment to their health and well-being. These widespread problems cause health professionals to agonize over how to try to make sure pati
Patient Consent (Nursing and Health Survival Guides)
by Elizabeth Charnock Denise OwensIdeal for quick reference, this pocket-sized (120x80mm), spiral-bound book in the popular Nursing & Health Survival Guide series puts all the crucial information about patient consent at your fingertips. There is an obligation for practitioners to obtain valid consent from their patients before examination, routine personal care or therapeutic treatment. However, the law relating to consent is complex. Situations may arise where a patient requires urgent treatment, yet is either unwilling or unable to give their consent, or there are concerns over the form and context of the consent. All you need to know on: the underlying principles of consent; consent and the adult patient; consent and the adult who lacks capacity; children and consent; young people and consent.
Patient-Derived Mouse Models of Cancer
by Robert M. HoffmanThis text highlights seminal discoveries and also provides comprehensive and state-of the-art approach to mouse models of human patient tumors. These areas include training, basic techniques, as well as general troubleshooting. Subsequent chapters focus on the different mouse models of patient tumors including the various strains of immunodeficient mice currently available and the transplantation techniques that can be used as well as state-of-the-art imaging techniques. Practical applications of the models from drug discovery, genome analysis to personalized treatment are also covered. Written by experts in that field, each of these sections address these critical issues. A brief review of the existing literature addressing the particular topic follows in each section. Presently, there is no single source to provide information on technique and uses of mouse models of human patient tumors. Patient-Derived Mouse Models of Cancer will satisfy this need for cancer researchers, oncologists, pharmaceutical and biotechnology industry scientists as well as molecular biologists studying in vivo systems
Patient-Derived Xenograft Models of Human Cancer
by Yuzhuo Wang Dong Lin Peter W. GoutThis book provides a comprehensive, state-of-the-art review of PDX cancer models. In separately produced chapters, the history and evolution of PDX models is reviewed, methods of PDX model development are compared in detail, characteristics of available established models are presented, current applications are summarized and new perspectives about use of PDX models are proposed. Each chapter is written by a world-renowned expert who is conducting cutting-edge research in the field. Each of the subsections provide a comprehensive review of existing literature addressing the particular topic followed by a conclusive paragraph detailing future directions. Extensive illustrations make this an interactive text. Patient-Derived Xenograft Models of Human Cancer will serve as a highly useful resource for researchers and clinicians dealing with, or interested in, this important topic. It will provide a concise yet comprehensive summary of the current status of the field that will help guide preclinical and clinical applications as well as stimulate investigative efforts. This book will propagate innovative concepts and prompt the development of ground-breaking technological solutions in this field.
Patient-Derived Xenografts: Methods and Protocols (Methods in Molecular Biology #2806)
by Mohamed I. SaadThis detailed volume explores the dynamic landscape of patient-derived xenograft (PDX) generation and applications. After a few chapters examining the evolution of PDXs, tracing their roots and contextualizing their significance in the broader narrative of cancer research, the book continues with methodologies for generating PDXs from diverse clinical tissue samples as well as for utilizing PDXs in various specific cancer types. From the development of humanized PDX models to the exploration of protein expression through advanced techniques including multiplex immunohistochemistry, Western blotting, and immunoprecipitation, the chapters offer a comprehensive toolkit for researchers and clinicians alike. Written for the highly successful Methods in Molecular Biology series, chapters include introductions to their respective topics, lists of the necessary materials and reagents, step-by-step and readily reproducible laboratory protocols, and tips on troubleshooting and avoiding known pitfalls. Authoritative and practical, Patient-Derived Xenografts: Methods and Protocols serves as an ideal interdisciplinary guide for understanding the intricate processes that underscore translational cancer research.
The Patient Doctor: How one man's cancer diagnosis led to a quest to put the heart back into healthcare
by Dr Ben BraveryAt the age of twenty-eight, with his Beijing-based science communications business doing well and a new relationship blossoming, Ben Bravery woke from a colonoscopy to be told he had stage 3 colorectal cancer. As a scientist, Ben understood the seriousness of his condition. Cancer had quite literally whacked him in the guts, after all. But what he didn't expect was how being a patient, and a young one at that, would make him feel. Why hadn't he been better prepared for the embarrassment and vulnerability of lying naked on the radiation table? Why wasn't he warned about the sheer number of tubes he would discover coming out of his body after surgery? Why did it feel like an imposition to ask doctors about his pain on their ward rounds? And why did he have to repeat the same information to them over and over again? During eighteen long months of treatment, including aggressive chemotherapy, Ben felt scared, overwhelmed, sometimes invisible and often alone.As he recovered, it struck Ben that after everything he'd been through he couldn't go back to his former career. He needed a change - and he wanted to make change. He wanted to become a doctor. He passed the entrance exam and dived headfirst into the challenges of medical school - including an unrelenting timetable, terrifying ward rounds and the difficulty of maintaining compassion under pressure.Now, driven by his experience on both sides of the healthcare system, this patient-turned-doctor gives a no-holds-barred account of how he overcame the trauma of his illness to study medicine and shares what he believes student doctors, doctors, patients and their families need to do to ensure that the medical system puts the patient at the very heart of healthcare every day.Honest, powerful, eye-opening and sometimes heart-wrenchingly funny, this is an inspiring memoir that shows that no matter our situation we all need to be treated with care and compassion, right until the very end.
Patient Education: You Can Do It!
by Ginger Kanzer-LewisInformation for motivating people to learn, assessing learning needs, evaluating teaching techniques & classes, making learning fun for both teacher & students, developing an education class or entire education program & teaching colleagues how to teach.
Patient Engagement: How Patient-provider Partnerships Transform Healthcare Organizations (Organizational Behaviour in Healthcare)
by Jean-Louis Denis Marie-Pascale Pomey Vincent DumezPatient-oriented approaches to healthcare management have been brought to the fore in recent years, yet this book underlines how even further change is needed in order to fully mobilise the experiential knowledge of patients, and ultimately improve our healthcare systems. With contributions from scholars and patients across the globe, this collection brings together a comprehensive overview of major achievements in patient engagement, analysing political, organizational and clinical contexts. By understanding the concept of care partnership, the authors explore how this patient revolution could transform, improve and innovate the ways in which care services are organized and delivered. Looking closely at the role of new technologies, this timely book will undoubtedly be of use to patients, managers and professionals within the healthcare industry, as well as those researching health policy and organization.
Patient Engagement in Pharma: A Psychologist Perspective
by Sumira RiazTerms such as “patient engagement”, “centricity”, and “patient first” are often loosely used to describe a company vision, a joint objective in establishing an ethos which incorporates the person who matters the most, the patient. Traditionally, a psychologist is known to work in clinical settings, directly with people experiencing psychological difficulties, within a healthcare structure. This is still the premise; however, the foundational knowledge and understanding of human behaviour has driven psychologists into a new, previously unconsidered professional field: the healthcare and pharmaceutical industry. This industry is pivotal in clinical drug development, new discoveries, innovation, and the reach is endless. So, what is a psychologist doing working in this environment? This book offers insights on how to build successful patient engagement strategies based on behaviour science and the real-world experience of a psychologist working in the pharmaceutical industry.
The Patient Equation: The Data-Driven Future of Precision Medicine and the Business of Health Care
by Glen de VriesHow the data revolution is transforming biotech and healthcare—and why you can’t afford to let it pass you by We are living through a time when the digitization of health and medicine is becoming a reality, with new abilities to improve outcomes for patients as well as the efficiency and success of the organizations that serve them. In The Patient Equation, Glen de Vries presents the history and current state of life sciences and healthcare as well as crucial insights and strategies to help scientists, physicians, executives, and patients survive and thrive in the current disruptive, tech-driven landscape. The biggest challenge facing biotech, pharma, and medical device companies today is how to integrate new knowledge, new data, and new technologies to get the right treatments to the right patients at precisely the right times. This book shows you how to meet that challenge and embrace the data revolution. Drawing on the fascinating stories of businesses and individuals that are already making inroads—from a fertility-tracking bracelet changing the game for couples looking to get pregnant, to an entrepreneur reinventing the treatment of diabetes, to Medidata’s own work bringing clinical trials into the 21st century—de Vries shares the breakthroughs, approaches, and practical business techniques that allow companies to stay ahead of the curve and to deliver solutions faster, cheaper, and more successfully—while still upholding the principles of traditional therapeutic medicine. How one rare disease is leading the way for new approaches to understanding precision medicine What it means to build robust, effective disease management platforms Why value-based reimbursement is changing the business of life sciences How the right alignment of incentives will improve outcomes at every stage of the patient journey Whether you’re a scientist, physician, or executive, you can’t afford to let the data revolution pass you by: understand the landscape with this must-read roadmap for success—and see how you can change the future of healthcare for the better.
The Patient Equation: The Precision Medicine Revolution in the Age of COVID-19 and Beyond
by Glen de VriesHow the data revolution is transforming biotech and health care, especially in the wake of COVID-19—and why you can’t afford to let it pass you by We are living through a time when the digitization of health and medicine is becoming a reality, with new abilities to improve outcomes for patients as well as the efficiency and success of the organizations that serve them. In The Patient Equation, Glen de Vries presents the history and current state of life sciences and health care as well as crucial insights and strategies to help scientists, physicians, executives, and patients survive and thrive, with an eye toward how COVID-19 has accelerated the need for change. One of the biggest challenges facing biotech, pharma, and medical device companies today is how to integrate new knowledge, new data, and new technologies to get the right treatments to the right patients at precisely the right times—made even more profound in the midst of a pandemic and in the years to come. Drawing on the fascinating stories of businesses and individuals that are already making inroads—from a fertility-tracking bracelet changing the game for couples looking to get pregnant, to an entrepreneur reinventing the treatment of diabetes, to Medidata's own work bringing clinical trials into the 21st century—de Vries shares the breakthroughs, approaches, and practical business techniques that will allow companies to stay ahead of the curve and deliver solutions faster, cheaper, and more successfully—while still upholding the principles of traditional therapeutic medicine and reflecting the current environment. How new approaches to cancer and rare diseases are leading the way toward precision medicine What data and digital technologies enable in the building of robust, effective disease management platforms Why value-based reimbursement is changing the business of life sciences How the right alignment of incentives will improve outcomes at every stage of the patient journey Whether you're a scientist, physician, or executive, you can't afford to let the moment pass: understand the landscape with this must-read roadmap for success—and see how you can change health care for the better.
The Patient Experience: The Importance of Care, Communication, and Compassion in the Hospital Room
by Brian BoyleBrian Boyle tells a personal story of his fight back from near death after a horrific automobile accident. He focuses on his experience as a patient who, while in a two-month long medically induced coma, was unable to move or talk to anyone around him, yet he was able to hear, see and feel pain. Brian slowly clawed his way back to the living and found the strength to live to tell his story in his acclaimed memoir, Iron Heart. Now Brian provides vital information from the patient’s perspective to help caregivers gain valuable insight that will help them understand new ways on how to provide care to both patients and their families. By completion of this book, the participant will be able to: Recognize the variety of feelings and emotions of the patient Identify simple methods and interventions to provide emotional support to relax the patient Determine the importance of particular amenities to a patient who may be unable to communicate Evaluate patient life-history to determine appropriate intervention techniques Understand the motivational role that communication has between the healthcare provider and the patient and his or her family Brian’s story about catastrophe, survival, and transcending all odds has implemented new and innovative strategies for improving patient safety and quality of care on a national level, as well as serving as a learning experience for healthcare providers of all levels and backgrounds. When it comes to the patient experience, Brian has become a mouthpiece for the voiceless.
Patient Flow
by Randolph HallThis book is dedicated to improving healthcare through reducing delays experienced by patients. With an interdisciplinary approach, this new edition, divided into five sections, begins by examining healthcare as an integrated system. Chapter 1 provides a hierarchical model of healthcare, rising from departments, to centers, regions and the "macro system. " A new chapter demonstrates how to use simulation to assess the interaction of system components to achieve performance goals, and Chapter 3 provides hands-on methods for developing process models to identify and remove bottlenecks, and for developing facility plans. Section 2 addresses crowding and the consequences of delay. Two new chapters (4 and 5) focus on delays in emergency departments, and Chapter 6 then examines medical outcomes that result from waits for surgeries. Section 3 concentrates on management of demand. Chapter 7 presents breakthrough strategies that use real-time monitoring systems for continuous improvement. Chapter 8 looks at the patient appointment system, particularly through the approach of advanced access. Chapter 9 concentrates on managing waiting lists for surgeries, and Chapter 10 examines triage outside of emergency departments, with a focus on allied health programs Section 4 offers analytical tools and models to support analysis of patient flows. Chapter 11 offers techniques for scheduling staff to match patterns in patient demand. Chapter 12 surveys the literature on simulation modeling, which is widely used for both healthcare design and process improvement. Chapter 13 is new and demonstrates the use of process mapping to represent a complex regional trauma system. Chapter 14 provides methods for forecasting demand for healthcare on a region-wide basis. Chapter 15 presents queueing theory as a method for modeling waits in healthcare, and Chapter 16 focuses on rapid delivery of medication in the event of a catastrophic event. Section 5 focuses on achieving change. Chapter 17 provides a diagnostic for assessing the state of a hospital and using the state assessment to select improvement strategies. Chapter 18 demonstrates the importance of optimizing care as patients transition from one care setting to the next. Chapter 19 is new and shows how to implement programs that improve patient satisfaction while also improving flow. Chapter 20 illustrates how to evaluate the overall portfolio of patient diagnostic groups to guide system changes, and Chapter 21 provides project management tools to guide the execution of patient flow projects.
Patient H.M.: A Story of Memory, Madness, and Family Secrets
by Luke Dittrich"Oliver Sacks meets Stephen King"* in this propulsive, haunting journey into the life of the most studied human research subject of all time, the amnesic known as Patient H.M., a man who forever altered our understanding of how memory works--and whose treatment raises deeply unsettling questions about the human cost of scientific progress. For readers of The Immortal Life of Henrietta Lacks comes a story that has much to teach us about our relentless pursuit of knowledge. *Kirkus Reviews (starred review) In 1953, a twenty-seven-year-old factory worker named Henry Molaison--who suffered from severe epilepsy--received a radical new version of the then-common lobotomy, targeting the most mysterious structures in the brain. The operation failed to eliminate Henry's seizures, but it did have an unintended effect: Henry was left profoundly amnesic, unable to create long-term memories. Over the next sixty years, Patient H.M., as Henry was known, became the most studied individual in the history of neuroscience, a human guinea pig who would teach us much of what we know about memory today. Patient H.M. is, at times, a deeply personal journey. Dittrich's grandfather was the brilliant, morally complex surgeon who operated on Molaison--and thousands of other patients. The author's investigation into the dark roots of modern memory science ultimately forces him to confront unsettling secrets in his own family history, and to reveal the tragedy that fueled his grandfather's relentless experimentation--experimentation that would revolutionize our understanding of ourselves. Dittrich uses the case of Patient H.M. as a starting point for a kaleidoscopic journey, one that moves from the first recorded brain surgeries in ancient Egypt to the cutting-edge laboratories of MIT. He takes readers inside the old asylums and operating theaters where psychosurgeons, as they called themselves, conducted their human experiments, and behind the scenes of a bitter custody battle over the ownership of the most important brain in the world. Patient H.M. combines the best of biography, memoir, and science journalism to create a haunting, endlessly fascinating story, one that reveals the wondrous and devastating things that can happen when hubris, ambition, and human imperfection collide.Praise for Patient H.M."An exciting, artful blend of family and medical history."--The New York Times"Patient H.M. tells one of the most fascinating and disturbing stories in the annals of medicine, weaving in ethics, philosophy, a personal saga, the history of neurosurgery, the mysteries of human memory, and an exploration of human ego."--Sheri Fink, M.D., Pulitzer Prize winner and author of Five Days at Memorial "Dittrich explores the limits of science and the mind. In the process, he rescues an iconic life from oblivion. Dittrich is well aware that while we are the sum of what we may remember, we're also at the mercy of what we can forget. This is classic reporting and myth-making at the same time."--Colum McCann, author of Let the Great World Spin "This book succeeds on every level: as a fresh look at the most famous patient in medical history, as an exposé of our dark history of psychiatry and neurosurgery, and, most powerfully, as a deeply personal investigation into the author's past. And yet it's still a page-turner that reads like a thriller."--Susannah Cahalan, author of Brain on FireFrom the Hardcover edition.
The Patient in the Family: An Ethics of Medicine and Families (Reflective Bioethics)
by Hilde Lindemann Nelson James Lindemann NelsonThe Patient in the Family diagnoses the ways in which the worlds of home and hospital misunderstand each other. The authors explore how medicine, through its new reproductive technologies, is altering the structure of families, how families can participate more fully in medical decision-making, and how to understand the impact on families when medical advances extend life but not vitality.
The Patient Multiple: An Ethnography of Healthcare and Decision-Making in Bhutan
by Jonathan TaeeIn the Himalayan Kingdom of Bhutan, medical patients engage a variety of healing practices to seek cures for their ailments. Patients use the expanding biomedical network and a growing number of traditional healthcare units, while also seeking alternative practices, such as shamanism and other religious healing, or even more provocative practices. The Patient Multiple delves into this healthcare complexity in the context of patients' daily lives and decision-making processes, showing how these unique mountain cultures are finding new paths to good health among a changing and multifaceted medical topography.
Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care
by Carol M. DavisOver 20 years ago, Dr. Carol M. Davis created the path for teaching health care professionals how to develop self-awareness and communication skills critical to providing ethical, compassionate, and professional treatment and care to their patients. That path is Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care, now in its Fifth Edition. While the ways of communication have evolved over the last 23 years, the face-to-face role of the practitioner and patient has not. With technology having a large presence in health care, the personal interaction and comfort provided by the health care professional serves an even more important purpose in facilitating healing with therapeutic presence. Patient Practitioner Interaction, Fifth Edition begins with chapters that assist students in self-awareness and understanding of their own history in developing their values and communication skills. This then guides the student into learning how to differentiate personal values from professional values. In the remaining chapters, Dr. Carol M. Davis and her contributors take Patient Practitioner Interaction, Fifth Edition into the heart of the text: teaching actual skill development in communicating with patients, as well as skills in diagnosis, prognosis, and treatment. The updated exercises at the end of each chapter encourage an essential element in the inculcation of these fundamental skills -- reflection and personalization of the material to ones own story. New in the Fifth Edition: * A new chapter on communicating about spirituality that teaches health care professionals to better assess the needs of patients and families dealing with hope, faith, and despair * New material on communicating in the information age * A reorganization of the chapters, contemporary terminology, and references * New and updated exercises at the end of each chapter in the book.
Patient Practitioner Interaction: An Experiential Manual For Developing The Art Of Health Care
by Carol M. Davis Gina Maria MusolinoFor over 20 years, Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care has been the cornerstone textbook for health care professionals to learn and develop effective interpersonal professional behavior. Building on the foundational knowledge of past editions, the updated Sixth Edition continues to teach health care professionals how to develop self-awareness and communication skills critical to providing ethical, compassionate, and professional treatment and care for and with their patients. Drs. Carol M. Davis and Gina Maria Musolino designed the textbook to assist both faculty and students through instructional and learning objectives emphasizing the importance of self-awareness in patient interaction. The Sixth Edition guides faculty in teaching the essential component required of all health care professionals: the ability to know oneself and one's patterns of response in highly contentious situations. Through the featured learning activities and chapters on self-awareness and self-assessment, students will be able to better understand, change, and evaluate their learned patterns, values, and readiness for mature patient interactions for both typical and challenging patient care situations. The learned skills of self-awareness and effective interpersonal communication allow clinicians, faculty, and students to provide compassionate and therapeutic treatment and care for the good of the patients and their families. Developing health care providers are also guided in new focus areas in health care leadership and advocacy through interactive exercises. Features and benefits of the Sixth Edition: Four chapters on self-awareness to guide students in evaluating their values and readiness for mature interaction with patients under stressful situations, as well as their ability and capability for self-assessment and peer-assessment Interactive and online learning activities of real-life clinical situations and vignettes with tools provided to use in the classroom to make learning active and engaging. New content areas addressing leadership and advocacy with professional and community organizations; and self and peer assessment for fostering reflective professional development. An accompanying Instructor's Manual to help faculty learn how to convey the material in effective ways Instructors in educational settings can visit www. efacultylounge. com for additional material to be used for teaching in the classroom. Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care, Sixth Edition will continue to be the go-to resource for students, faculty, and clinicians in allied health professions for effective patient interaction.
Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care
by Carol M. Davis Gina Maria MusolinoFor over 20 years, Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care has been the cornerstone textbook for health care professionals to learn and develop effective interpersonal professional behavior. Building on the foundational knowledge of past editions, the updated Sixth Edition continues to teach health care professionals how to develop self-awareness and communication skills critical to providing ethical, compassionate, and professional treatment and care for and with their patients. Drs. Carol M. Davis and Gina Maria Musolino designed the textbook to assist both faculty and students through instructional and learning objectives emphasizing the importance of self-awareness in patient interaction. The Sixth Edition guides faculty in teaching the essential component required of all health care professionals: the ability to know oneself and one’s patterns of response in highly contentious situations. Through the featured learning activities and chapters on self-awareness and self-assessment, students will be able to better understand, change, and evaluate their learned patterns, values, and readiness for mature patient interactions for both typical and challenging patient care situations. The learned skills of self-awareness and effective interpersonal communication allow clinicians, faculty, and students to provide compassionate and therapeutic treatment and care for the good of the patients and their families. Developing health care providers are also guided in new focus areas in health care leadership and advocacy through interactive exercises. Features and benefits of the Sixth Edition: Four chapters on self-awareness to guide students in evaluating their values and readiness for mature interaction with patients under stressful situations, as well as their ability and capability for self-assessment and peer-assessment Interactive and online learning activities of real-life clinical situations and vignettes with tools provided to use in the classroom to make learning active and engaging. New content areas addressing leadership and advocacy with professional and community organizations; and self and peer assessment for fostering reflective professional development. An accompanying Instructor’s Manual to help faculty learn how to convey the material in effective ways Included with the text are online supplemental materials for faculty use in the classroom. Patient Practitioner Interaction: An Experiential Manual for Developing the Art of Health Care, Sixth Edition will continue to be the go-to resource for students, faculty, and clinicians in allied health professions for effective patient interaction.
Patient Preparation for Bariatric Surgery
by Peter N. BenottiPatient Preparation for Bariatric Surgery provides a comprehensive and state of the art review of all aspects of the patient preparation process, The text reviews current literature and controversies involving sources of referrals and the difficulties encountered by primary care physicians in managing patients with extreme obesity. Strategies for addressing this problem and integrating primary care physicians in comprehensive obesity programs are presented. The text also reviews current indications for surgery and the current patient access limitations that have resulted in the need for revised surgical indications based more on medical need than mere extent of obesity. Written by an authority in the field, Patient Preparation for Bariatric Surgery is a valuable resource for bariatric surgeons, bariatric physicians and all allied health personnel who manage patients with extreme obesity and will assist in the advancement of this area of surgery as well as stimulate new discovery.
Patient Privacy, Consent, and Identity Management in Health Information Exchange
by Susan D. Hosek Susan G. StrausThe Military Health System (MHS) and the Veterans Health Administration (VHA) have been among the nation's leaders in health information technology (IT), including the development of health IT systems and electronic health records that summarize patients' care from multiple providers. Health IT interoperability within MHS and across MHS partners, including VHA, is one of ten goals in the current MHS Strategic Plan. As a step toward achieving improved interoperability, the MHS is seeking to develop a research roadmap to better coordinate health IT research efforts, address IT capability gaps, and reduce programmatic risk for its enterprise projects. This report contributes to that effort by identifying gaps in research, policy, and practice involving patient privacy, consent, and identity management that need to be addressed to bring about improved quality and efficiency of care through health information exchange. Major challenges include (1) designing a meaningful patient consent procedure, (2) recording patients' consent preferences and designing procedures to implement restrictions on disclosures of protected health information, and (3) advancing knowledge regarding the best technical approaches to performing patient identity matches and how best to monitor results over time. Using a sociotechnical framework, this report suggests steps for overcoming these challenges and topics for future research. Book jacket.
Patient Reported Outcome Measures in Rheumatic Diseases
by Yasser El MiedanyThis book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, "Patient Reported Outcome Measures in Rheumatic Diseases "serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.
Patient-Reported Outcomes and Experience: Measuring What We Want From PROMs and PREMs
by Tim BensonThis book shows how PROMs and PREMs can help improve patient experience and outcomes. Part 1 covers the core principles of PROMs and PREMs, including their strengths and weaknesses, reporting and analysis, data sharing and valuation. Part 2 covers measures of patient experience, health status, wellbeing, self-efficacy, individualized measures, social determinants of health and impact evaluation. It concludes with a discussion of staff-reported measures, proxies and caregivers. Patient-Reported Outcomes and Experience: Measuring What We Want with PROMs and PREMs concisely covers how to use these measures successfully to improve patient experience of healthcare services and associated outcomes. It is a critical resource for trainee and practicing clinicians, managers, analysts and policymakers seeking an up-to-date reference on the latest developments in this rapidly expanding field.
Patient Reported Outcomes and Quality of Life in Cardiovascular Interventions
by Thanos Athanasiou Ara Darzi Aung Ye OoThis book provides a guide to the assessment of patient reported outcomes measures and quality of life in cardiovascular interventions, which have become a fundamental component of decision making in bedside medicine, health policy, health economics, and public health. Cardiac surgery, cardiovascular interventions, vascular interventions, and the core principles of quality of life are all covered. This book is the first book to demonstrate how clinicians and policy makers can easily get access to a single source of quality of life and patient reported outcomes measures evidence to help them make the best informed decisions in the field of cardiovascular interventions. This is a rapidly emerging field and the book would be relevant to doctors, healthcare scientists, allied-health professionals, healthcare managers, medical statisticians, healthcare economists, and consultants working in healthcare.